Chapter 5

By the time I reached the proposed center the next morning, I had covered the Transportation section with a yellow sticky note.
Not because I thought a square of paper would solve anything. I just didn’t want the blank space to disappear beneath all the other polished pages.
The center was being planned inside a renovated medical office building on the north side of San Antonio. The lobby smelled faintly of fresh paint. Sunlight spilled across pale tile, and a temporary sign directed visitors toward a conference room where Carter Holdings had spread its plans across a long table.
The rooms looked hopeful on paper. A therapy studio. Private consultation rooms. A family lounge. A multipurpose space with room for workshops and support groups.
I read the schedule again.
The proposed program ran Monday through Friday, from nine in the morning until four in the afternoon. Consultations had fixed appointment blocks. Group sessions began at set times. The therapy studio would be available by reservation.
It was orderly. It was also the kind of schedule that assumed everyone could arrive on time, stay as long as needed, and get home afterward.
A woman in a navy blazer introduced herself as a planner working with the project team. She spoke in the brisk, confident way of someone used to presenting information to people who had already approved the broad idea.
“This model gives us measurable services,” she said, indicating a chart. “We can track attendance, sessions delivered, and utilization of the therapy space. Those metrics will tell us whether the center is meeting demand.”
I looked down at my notes.
“Who tested the schedule with people who would use it?”
She paused.
“We based it on existing service models and clinical guidance.”
“That’s not quite what I asked.”
Alexander stood at the other end of the table, his jacket folded over a chair. He had come straight from another meeting, judging by the phone in his hand and the papers tucked beneath his arm.
“The consultants reviewed established programs,” he said. “We’ve spent a lot of time trying to make sure this is practical.”
“I can see that,” I said. “I’m not saying the work is careless. I’m asking whether anyone who lives with Parkinson’s or cares for someone who does helped set these hours.”
The planner folded her hands.
“We haven’t conducted community interviews yet. The initial goal was to develop a workable proposal before bringing it to potential participants.”
I glanced again at the neat columns on the page. Every room had a purpose. Every staff role had a title. The people who might walk through the doors had not yet been asked what would help them walk back out.
“Can we look at the building?” Alexander asked.
The planner gathered her papers. “Of course.”
I carried my folder as we toured the proposed spaces. The therapy studio was bright and clean, with a wall of windows and enough open floor for exercises. The consultation rooms were quiet, with comfortable chairs arranged to face each other. A smaller room was labeled “Caregiver Support,” though the schedule listed just one weekly session.
“How many people are expected to attend?” I asked.
“Six to eight, depending on registration.”
“And if someone needs a break from caregiving to attend?”
The planner glanced at her notes.
“We expect family members to arrange their own coverage.”
“Then the room can be available,” I said, “but the person who needs the support might not be able to get here.”
Alexander’s mouth tightened slightly.
“We can’t provide every service ourselves,” he said. “The purpose is to connect families with resources, not replace home care.”
“I understand. I’m not suggesting the center should provide everything. I’m asking whether we know what resources families can actually reach.”
He looked at the folder in my hands.
“That’s part of what we’re reviewing.”
It wasn’t an argument, exactly. But I heard the defense in his voice. He had invested time and money in the plan, and perhaps more hope than he wanted to admit. I knew what it was like to have people treat a question as an accusation.
So I kept my tone even.
“I’m not saying the plan is worthless. I’m saying a service can exist on paper and still be out of reach.”
We entered the multipurpose room. A table stood at the center, surrounded by chairs. On the wall, a rendering showed a welcoming space with plants, soft lighting, and a counter where refreshments would be served.
I imagined someone arranging a ride, leaving home early, making it through a crowded entrance, and arriving just in time for a session that couldn’t wait. I imagined a spouse who needed to attend but couldn’t leave the person they cared for alone. There was no line on the schedule for those complications.
A door opened behind us.
Eleanor stepped into the lobby, wearing the cream-colored blouse I remembered from the café. Alexander turned at once.
“Mother, I thought you were meeting us inside.”
“I thought I was,” she said. “I followed the sign, then found another sign pointing the other way.”
She was smiling, but one hand gripped her purse strap. The entrance had two similar-looking corridors, each marked with temporary arrows. I watched her eyes move from one sign to the next.
“Would you like me to walk with you?” I asked.
Eleanor looked at me, then at the hallway.
“Yes, thank you. I’d like to see where it leads.”
I offered my arm without taking hers. She chose to hold it lightly as we crossed the lobby. Alexander started to step closer, then stopped himself.
At the junction, Eleanor studied the arrows.
“This one says reception,” she said. “But reception is behind us.”
The planner hurried over.
“I’m so sorry. Those are temporary signs. The permanent wayfinding system will be clearer.”
“Will people be expected to know which entrance to use before they arrive?” Eleanor asked.
The planner blinked. “We can certainly look at that.”
“Good,” Eleanor said. She didn’t raise her voice. She didn’t need to.
We walked back toward the conference room. Eleanor released my arm when she reached the table and pulled out a chair herself. The moment was small, but it stayed with me. Help had been offered. She had accepted exactly the amount she wanted.
Alexander watched her settle in.
“The building staff haven’t finished the entrance,” he said. “That’s why there are temporary signs.”
“I know,” Eleanor replied. “I’m not criticizing the paint.”
She laid her purse beside her chair.
“I’m asking what happens when a person arrives tired, worried, or unsure whether they’re in the right place. If I couldn’t figure it out, someone else might have the same trouble.”
No one answered immediately.
The planner looked down at the plans. Alexander’s expression softened, but he still looked at the pages as if they might defend themselves.
I turned to my notes. I had promised to identify what was missing, not to decide what everyone else needed. That boundary mattered. I could ask questions. I could listen. I couldn’t stand in for a room full of families who hadn’t been invited yet.
“I don’t have a verdict,” I said. “I have questions. Who has a ride? What happens if they don’t? Can someone come late without losing the whole session? Is there a place to sit if the waiting room is crowded? Can caregivers attend without leaving someone alone? And who gets to say whether these hours work?”
The planner picked up a pen.
“We can add those to the next review.”
“Could we ask people before the next review?” I asked. “Not after the schedule is finalized?”
Alexander looked toward the windows. For a moment, I thought he might insist that the consultants needed more time, or that changing the plan would delay the project. Instead, he pulled out the chair beside Eleanor and sat down.
“What would a listening session look like?” he asked.
“People with Parkinson’s and caregivers would be invited to talk about what they can use, what gets in the way, and what they don’t want decided for them. We’d make the questions clear. We’d also explain what’s still flexible and what isn’t.”
The planner tapped her pen against her notebook.
“We would need to define the scope and avoid implying that every suggestion can be incorporated.”
“Agreed,” I said. “Listening doesn’t mean promising everything. It means people know their input reached someone before decisions are made.”
Eleanor rested her hands in her lap.
“And it means asking me what I want before deciding what I need.”
Her voice was calm, but the sentence changed the temperature in the room. Alexander looked at her. He didn’t rush to answer.
Then he glanced at the blank Transportation section visible in my folder.
“Emily,” he said, “write up the questions you’ve raised. No conclusions yet. Just what we need to learn.”
I nodded, relieved he hadn’t asked me to declare the plan a failure or pronounce it ready.
“I can do that.”
“And I’ll authorize a listening session,” he said. “We’ll invite people with Parkinson’s and caregivers before the next design review.”
The planner began writing. Eleanor asked whether the invitation would make clear that attendees could bring someone with them. Alexander said it would. I made a note to include transportation in the questions, not as a promise of a solution but as something the team needed to examine honestly.
For the first time since I had opened the folder, the blank space didn’t look like an oversight I had to fill by myself. It looked like a question we might take to the people who knew the answer.
Then Alexander’s phone buzzed.
He read the message, and the brief relief left his face.
“What is it?” I asked.
“The board chair wants an update before the next review,” he said. “They expect results from the proposed listening session before they’ll consider any changes to the plan.”
“Before we’ve even held it?” the planner asked.
May you like
Alexander looked at the phone again.
“That’s what they’re demanding.”